Update: Jesse is officially active on the lung transplant waiting list with a lung allocation score (LAS) of 38.859 Jesse’s family was planning on 2017 being a year to rebuild and bond as a family of four after 5 years of fostering and two years of back-to-back legally contested adoptions drained us mentally and financially. Plans changed when a January clinic visit showed his lung function at 22% and he missed the better part of 5 weeks of work with a hospital stay, home IVs, and many doctor’s appointments.
They were hesitant to open up this donation campaign after they received hundreds of peoples’ generous gifts in 2016 for their second adoption, but were encouraged to do so by family who is also willing to assist.
The family currently has a small emergency fund and they fully expected that their work-from-home business would allow him to work right up until transplant. That no longer seems to be a reasonable expectation, as the decline to reach transplant status has made concentrating and doing the actual work much more of an effort than Jesse ever imagined.
They felt that they were entirely prepared for a quick medical leave after surgery but not any decreased
Source: https://managewp.org/articles/14671/jesse-petersen-needs-our-help
source https://williechiu40.wordpress.com/2017/03/22/jesse-petersen-needs-our-help/
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